Precision Healthcare Ecosystem (PHE) is a CA 501c3 nonprofit corporation, created with the vision that “The Doctor of the future will be oneself.” Its inaugural program, Project Apollo, utilizes a multi-disciplinary, collaborative and integrative care model to educate, enable and empower participants to lead a personalized health journey. Members of our founding cohort are guided by their own “real-world” evidence and data to achieve Project Apollo’s Vision and Mission:
Vision – A world of people empowered to realize optimal health.
Mission –To make healthcare more collaborative by amplifying patient and community voices through data-informed processes.
Purpose– To help people feel seen, heard, and respected so they feel empowered to take ownership of their health.
Who We Are
The Precision Healthcare Ecosystem and Project Apollo founding cohort includes an extraordinary group of accomplished individuals who are also patients with complex, chronic, undiagnosed or other challenging medical conditions. This group of professionals, which includes scientists, healthcare researchers, integrative medicine practitioners, medical students, business leaders, educators, media specialists, documentarians, engineers, athletes, and wellness coaches, all have a common commitment — to leverage their collective experiences of gaining empowerment in order to help other patients gain control over their healthcare journey, define their wellness, and become their own best advocate.
What We Offer
To Patients: Patients are exhausted by their search for treatment solutions that actually work and by the need to advocate for themselves in order to receive more effective care. Through the Study of Me™ toolkit, (available soon), Project Apollo uses a whole health history model, supported by a nurturing community, and provides educational tools and self-study protocols that patients can easily adapt to their unique health challenges. Using these tools, patients can collect, observe, and visualize their own health data in order to bring actionable information to their providers. The goal is to be able to better advocate for care that reflects their real-life experiences, thereby engaging in a more collaborative partnership with their providers.
To Physicians: Project Apollo offers an opportunity for physicians and other integrative care providers to work collaboratively with engaged, informed patients who are willing to invest time and effort into their care. The goal is to create more personalized care and, as a result, potentially improve patient outcomes. Your patients may benefit by gaining access to Project Apollo programs and services, for mutually beneficial relationships.
To Researchers: Project Apollo patients are comfortable collecting, documenting, and sharing their own health data, and have an appreciation for the discipline and rigor needed to be valuable research partners. Our self-study approach enables participants to contribute to patent-centric study designs, and provide perspectives on the potential impact of your work. Our cohort members are available to offer support in product development, clinical trial design, and other patient point-of-view engagements.
To Corporate Partners: Precision Healthcare Ecosystem is actively pursuing opportunities to engage directly with innovative healthcare and related companies seeking to increase their patient engagement by offering access to educated, informed, disciplined, and empowered patients.
A group of between ten to twenty patients from within the PHE community has expressed a willingness to participate on an as-needed basis with the following types of projects, subject to their availability and health status, and based on the timing of each project element:
• User Experience Testing: Supporting structured programs to be collaboratively developed to test new devices or new device applications.
• Patient Engagement/Satisfaction Survey for Clinical Trials: Supporting the initial design and development of surveys, and ongoing iterations based upon survey results.
• Clinical Trial Return of Results: Representing the patients’ perspective relative to incorporating regulatory guidance in the return of clinical trial results to patients.
• Patient “Point of View” Advisory: Serving in the capacity of an ad hoc Advisory group, to be available for small and quick feedback on any and all questions as they might arise.